Monday, June 11, 2018

If I sit down, my day is over

I am sure many of you know the thought process of, "I am so tired that I need a rest, but if I sit down there is no way I am getting back up to finish this, but I am in such pain I don't know how to go on."
Sound familiar?
It is one of the worst internal battles I have ever had and almost always leads to being depressed no matter which way I chose to go with it. If you chose to go ahead and sit down, you beat yourself up mentally for days for not sticking to it and getting done what needs to get done. If you chose to keep going through the pain, then you crash really hard later and beat yourself up because now you have no energy to do any tasks the next day. It is a vicious cycle that can only be beat by being able to actually get up after taking a rest, but for some reason that takes more energy and self control than just about any other task we preform.
I can't tell you the number of times I have heard the phrase, "I am so worn down, but if I sit down, that's it." It is such a common thought process among chronic pain sufferers. The amount of Zen that is required to finish the task becomes astronomical and you use it all up on finishing the one task so you can't ration it for the rest. When you reach that point there really is nothing that can restore any of the missing Zen either. You either sit down and use the rest of the Zen just to not be empty the next day, or you keep going and risk starting your day with much less Zen than you usually do.
Usually posts like this would take you through ideas and suggestions on how to fix the problem or how to minimize it but honestly I really don't have any good suggestions. Personally I am the kind of guy who chooses to keep going when that comes up just because I hate feeling like I am have failed at the task I set forth for myself. I know that failure is a bad word to use for it but I can't get past it.
This post was actually my way of asking for your input. I am very curious what YOU do to deal with this issue. How do you have Zen the next day if you keep going, or how do you handle the frustration of having to stop if you sit down? Give us your tips and suggestions to help us and to help others. Tips and suggestions given may be passed on to the followers of our Facebook Page.

Thank you for your time and I hope today is a good day for you.
-Byron

Friday, June 1, 2018

Hi! My name is (not slim shady)

Hey everyone! My name is Tambi :)

I am  35 years old, married, with two very energetic little boys.

Currently I suffer from multiple autoimmune diseases.

I have rheumatoid arthritis, fibromyalgia, degenerative disc disease, tmj, chondromalacia patella, and various  mental illnesses lol.

My illnesses cause me to have intense pain all over my body, as well as inflammation. On most days I can no longer button pants or zip up clothing. I get brain fog that makes it hard to focus. The worst part of all is it makes it hard for me to play with my kids. I haven't been able to work since about February. Most places are not accommodating to those of us who have mobility issues. Sitting hurts, standing hurts, everything hurts.

Right now I am fortunate enough that I get pain medicine for my pain, but due to the strict regulations on narcotics and medications, I am in danger of losing my medication. If I lose access to my pain meds, I will not have much of a life. I recently filed for disability so I am hoping they will be able to help me out.

Looking forward to interacting wirh everyone:)

Byron's Introduction

I suppose we should start this blog with introductions. I will let me cohort do her own intro, so now you just get to hear all about me, aren't you excited? I bet!
Hi, I am Byron. I am 35, married, 4 kids, am a geek, and love to write.

I also suffer from chronic pain on multiple levels.
1) I suffer from chronic migraines brought on by most the factors you'll see below and some that I'm not sure of.
2) I have pain from grinding my teeth in my sleep or when anxious or when in a ton of pain. It's cause a few teeth to break apart or crack.
3) The teeth grinding caused my jaw pads to deteriorate so now I have a ton of constant jaw pain.
4) I have FODMAP issues which means my body can't break down short chain carbohydrates properly. Some of the main symptom triggers are Wheat, Dairy, Garlic, Onions, Apples, Mango, and High Fructose Corn Syrup. Now, please, go to the store or a restaurant and find me foods that don't contain those items. Eating FODMAP food gives me severe abdominal cramps, bloating, headaches, fatigue, and diarrhea. My wife comforts me but has little sympathy as eating FODMAP foods puts me through what women go through monthly, and to all women I apologize for ever thinking you were over exaggerating the pain.
5) I have sleep apnea issues which means I don't get enough oxygen when I sleep, so my body can't repair itself properly while I sleep, which least to body aches and constant exhaustion.
6) If I bend over for more than a moment I get intense waves of pressure in my head that can cause severe headaches and/or nausea.
7) My ears ring at all times, day or night, and the quieter the world is around me, the louder the ringing gets. The more pain I am in also can make the tones louder and add more tones to it. An average day I have at least two high pitched tones, and two low pitch tones going on at the same time.

So, as you can see, pain is just a part of life for me. There is no escaping it, and no medication really takes care of it.
Before you ask, no I haven't been to a doctor in a while to get it taken care of. I can't afford the insurance through my work, and when I apply for medicaid I am told I qualify on a federal level, but not on the state level, and it never gets resolved fast enough for me to finish signing up for anything else through healthcare.gov before the deadline.
So I am stuck doing what I can on my own to try to curtail as much of the pain as possible without getting hooked on pills and without killing my stomach anymore than I already have.

Welcome to my world, it's such a blast.

If I sit down, my day is over